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Fraser Syndrome Awareness

Finding a cure

Fraser Syndrome (also known as Meyer-Schwickerath’s syndrome) is a rare non-sex linked recessive genetic disorder that affects one out of every 100,000 births. The mutated gene that causes Fraser Syndrome must be a gene carried by both parents in order for it to be passed down through the blood line.

It is characterized by developmental defects including cryptophthalmos (where the eyelids fail to separate in each eye), and malformations in the genitals (such as micropenis, cryptorchidism or clitoromegaly). Congenital malformations of the nose, ears, larynx and renal system, as well syndactyly (fused fingers or toes).

In many countries proper medical care is not available, making it nearly impossible for parents and even doctors to obtain information about this rare disorder.

Life expectancy of a Fraser Syndrome patient depends on many different factors. The type and severity of the kidney or voice box malformations is determined at prognosis and will play a direct factor in the patient’s chances of survival. Twenty-five percent of all children born with Fraser Syndrome are still born and 20% of the remaining survivors will die within the first year, often times in the first few weeks of life. The remaining 55% of affected Fraser patients can live normal lives with proper care and education

The program aims to educate, empower and enlighten parents, doctors and those living with Fraser Syndrome, by bringing awareness to the disorder and funding the research to eventually find a cure.

If you or someone you know is living with Fraser Syndrome, we encourage you to tell us your story and see how we can help.

Our Programs

Forever Wish

Fulfilling dreams of young adults in underserved communities

Zero Hunger Initiative-Empowering Hope

Disaster Relief Funds

METHAL (Role Model) Program

Educate, Empower and Enrich the quality of life of exceptional and underserved youth globally.

Humanitarian & Cultural Missions

Fostering understanding and celebrating humanity


Changing the future of aspiring entrepreneurs with the building blocks of quality higher education

The Wave Initiative

Women achieving value and empowerment

Sisterhood Worldwide

Transforming the lives and spirit of young women

ALO Care Program

Improving the quality of care and supporting low-income families in times of crisis

ALO-Diversity Symposiums

The Foundation continues its march toward cultural unity and meaningful connection by hosting a series of discussions designed to bring diverse cultures and communities closer than ever with shared understanding, compassion, and empathy.

ALO-ART Exhibition

When art is conveyed through the eyes of a child, they are able to capture innocence, creativity, and emotional expressions that are not often present in adult works of art.